Author: Katie

Hi everyone, My name is Katie Mahar. I am 29 years old. I have my Associates Degree in Science and have gone to Landmark College for 2 years. My neurodiversity are 2 things actually. #1- I am deaf. But, I have a cochlear implant so I can still hear people enough to communicate. So, you could say that my first diversity is audio. #2- My other diversity is environmental. I was born with a genetic disorder (called Xeroderma Pigmentosm (XP) ). What this means is that I have a hyper-sensitivity towards sunlight. Sunlight damages my DNA beyond repair and causes developmental issues such as eye sight impairment, deafness, and other things. Within the light spectrum: I am severely impacted by UV rays (The sun and black lights) in which I'll go straight to burning to the 3rd degree With Halogen lights (Orange + Red): I get mild rashes that last a few days. With Fluorescent lights (Whites + Purple): I get mild headaches. These lights are found on cars mostly. But being inside the car is ineffective. The light I am safe around are incandescent lights. Other than all of this, I can be best described as friendly, understanding, humorous, and sensitive. I care the world about the people in my life. I'll be the first to make sure that everyone is included. Want to know more about me? Just ask. I'm an open book :)

“Whoops, there she goes!”

  Every sixteen year old is excited to get their driver’s license. I, on the other hand, was not so happy. Let’s take a trip down memory lane to the first time I drove a car. At seventeen, I am just starting to drive and I am completely unaware of my lazy eye. The driving… Read more »

Xeroderma Pigmentosm: Katie’s Story

When I was a toddler, I was diagnosed with Xeroderma Pigmentosm (XP). You are probably thinking, “What is that and how do I even begin to pronounce that fancy-looking word?” Well, let me help you out a bit. Zee·row·dur·muh puhg·muhn·tow·sm is a life-threatening genetic disorder that prevents me from ever being in sunlight. I know… Read more »